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  1. #1
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    Aortic Disection

    I doubt anyone noticed, but I have not been contributing to the threads in the last 2.5 weeks. That is because I was in the Hospital. On Saturday July 21st My lower Aorta had a Dissection that sent me to the ER and gave me over 2 weeks in the ICU. The dissection is different from an Anurism, essentially due to genetics I have weak connective tissue, and apparently I also had high blood pressure. This caused the walls of my Aorta to begin separating from each other similar to how an onion skin can peal away under pressure. This caused me some pretty intense pain in my chest at first and then my lower back.

    Lucky for me the doctors decided I could heal without surgery. Surgery would of meant cutting our about 20+ inches of my Aorta and replacing it, a very dangerous surgery.

    I was put on major blood pressure medication, and am still on quite a few pills to keep my blood pressure low. As long as I can control it though meds and diet the lower pressure should allow my Aorta to heal on its own.

    After the doctors were able to control my Blood Pressure with meds for more than 24 hours they gave me the clear to go home. I was released yesterday and slept in my own bed last night. I still have a long way to go, but I am feeling much better than when I first went into the Hospital. I owe my life to the ER crew at the Scripps Encinitas Hospital, and my recovery to the Scripps Green Hospital in La Jolla.

    This means no exercise for a while, so my recently rebuilt bike is just gonna sit there in the garage and taunt me...

    I hope everyone else here is doing ok.
    Last edited by Klurejr; 05-19-2014 at 04:06 PM.
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  2. #2
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    yikes.

  3. #3
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    Damn. Speedy healing to you!

  4. #4
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    Wow

    hope you get better quick.

    I always think about that as I am riding with guys 10 - 20 years my junior. I have no problems keeping up with the most fit but I always wonder if it is just a matter of time before it blows up.

    Take care and we hope to see you on the trail again.

  5. #5
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    get better man
    Quote Originally Posted by VanillaEps View Post
    A little bit of pee just trickled out of my pipi when I saw that.

  6. #6
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    I know a couple of sisters who both have the gene for weak connective tissue, and both have aortic aneurisms as a result. As you likely know, they will not repair them until they reach 5cm in most cases, so one has had the surgery, one has not.

    They both have many issues wit things like hernias, joint injuries, etc, all related to this particular gene defect.

    Hope yours is much more limited. Get well quick.

  7. #7
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    That's heavy duty, glad to hear you're on the mend! Healing vibes sent.
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  8. #8
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    Heal and ride once again!

  9. #9
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    Wow - this took my dad's life a couple of years ago - glad to hear that yours was "caught early" and you can be treated. My dad's episode was major, and while he survived the initial attack, he passed away later after massive surgery. It has me thinking that it is something that I'll have to be aware of for myself over the years coming. Live your life and enjoy all of it you can, and hopefully you'll be back on your bike soon. The fact you ride has probably helped you be able to survive this and will keep you going in future years! Best wishes!
    R.I.P. Corky 10/97-4/09
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  10. #10
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    Wow, sorry to hear this. Do you mind talking about it some more...

    What was causing the high BP levels?

    How high was your BP?

    Feel better fast,
    'hawg


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    Glad to hear your doing well. I work in radiology and see lots of these cases glad to hear yours was caught early. You'll probably have to keep an eye on it for the next few years as the tear in the lining can cause blood to divert away from essential areas if not monitored. But good to hear your doing well. Keeps us posted.

  12. #12
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    Quote Originally Posted by ambassadorhawg View Post
    Wow, sorry to hear this. Do you mind talking about it some more...

    What was causing the high BP levels?

    How high was your BP?

    Feel better fast,
    'hawg

    I don't mind at all.

    I am not 100% sure why my BP was elevated over the past few years. The docs found my left ventral in my heart was thicker than it should be, and that is a sign I had higher BP for a while. I had a physical exam a little over 3 years ago in the process of getting life insurance, and my pressure came in normal back then, 128/80 or something like that.

    June 2011 I was 250lbs and started up a Crossfit workout program that I did for about 7 Months. I dropped close to 20lbs plus dropped a large amount of fat and built up some muscle. This past spring I felt better then I had in a very long time, I was able to jump back on the MTB and ride up trails without stopping that would of made me take breaks the year before. Since December I have been a bit more reserved in my exercise. Besides a weekly ride I would hit the gym, run on the treadmill and do some lifting with machines, or my wife and I would take the dogs for a 2 mile hike/walk around Lake Calavera. So I was maintaining my new found good health. I had even changed my diet some over the last year, trying mostly to control my portions and eat less.

    When the dissection occurred my BP was around 180 when I got into the ER, The docs say the extra trauma on my body is also keeping the BP higher now even though I am stable due to the massive amount of meds I am on. I am only 34 years old, so they hope with time and continued control of the BP through meds and diet the dissection will heal.

    It does seem to act up every day and I have to take pain meds, cause if the pain gets too bad it will cause my BP to rise as well.
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  13. #13
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    Wow! Heal up, dude.

    As long as yo have this enforced down time / healing time, may I suggest looking at what you can do in terms of lifestyle improvements to manage your blood pressure - lower salt diet, meditation. And do things that make you happy. I know those last two things sound kind of new-agey, but I had some heart issues last year, trivial compared to you, and the above were pretty much the marching orders from my doctor.

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    Quote Originally Posted by HarryCallahan View Post
    Wow! Heal up, dude.

    As long as yo have this enforced down time / healing time, may I suggest looking at what you can do in terms of lifestyle improvements to manage your blood pressure - lower salt diet, meditation. And do things that make you happy. I know those last two things sound kind of new-agey, but I had some heart issues last year, trivial compared to you, and the above were pretty much the marching orders from my doctor.
    That's not new-agey at all, Harry. I have been teaching Tai Chi and meditation to cardia patients in a major hospital here for the last 10 years. Documented evidence-based studies show that Tai Chi is better at improving VO2 Max numbers than brisk walking, often the "gold-standard" for cardio conditioning in heart patients and seniors.

  15. #15
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    A doctor noticed my teenage son exhibiting outward signs of a connective tissue disorder and ordered an echocardiogram to check his aorta. My boy is okay, thank goodness. Here's wishing you a speedy recovery!
    Bionically Modified

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    Quote Originally Posted by LadyDi View Post
    A doctor noticed my teenage son exhibiting outward signs of a connective tissue disorder and ordered an echocardiogram to check his aorta. My boy is okay, thank goodness. Here's wishing you a speedy recovery!
    Thanks!

    Do you have connective tissue issues in your family? I did, but figured i was young enough to not worry about it and then developed hypertension that lead to the issue. i would just recommend you get your sons blood pressure checked twice a year to watch for signs of it elevating. Have a good one!
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  17. #17
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    Quote Originally Posted by HarryCallahan View Post
    Wow! Heal up, dude.

    As long as yo have this enforced down time / healing time, may I suggest looking at what you can do in terms of lifestyle improvements to manage your blood pressure - lower salt diet, meditation. And do things that make you happy. I know those last two things sound kind of new-agey, but I had some heart issues last year, trivial compared to you, and the above were pretty much the marching orders from my doctor.
    I am actually on a low calorie low sodium diet already, just glad my wife is a good cook.
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  18. #18
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    Quote Originally Posted by Klurejr View Post
    Thanks!

    Do you have connective tissue issues in your family? I did, but figured i was young enough to not worry about it and then developed hypertension that lead to the issue. i would just recommend you get your sons blood pressure checked twice a year to watch for signs of it elevating. Have a good one!
    Yes, I have symptoms too (lax joints and other issues) and my great uncle died of aortic dissection. I will definitely help my son monitor his BP. We are seeing the cardiologist today.
    Bionically Modified

  19. #19
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    Update!!!

    Just got approved by the doc to start riding again!!!! I don't think I can ride at Calavera just yet, too much climbing and rough downhills, but I can do something like Mule Hill or in his words "Lake Hodges" is fine. Now I need to get a new chain for the bike and get my rear deraulier adjusted so I can get back in the saddle!!!!!
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  20. #20
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    Good luck and take it easy..... very glad to hear another mtbiker is getting back on it!

  21. #21
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    Congrats! If you're looking for mellow, there's a trail up here in San Juan Cap--Arroyo Trabuco--that's about as flat as they come in Socal. Even if you take it to the end, it gains less than 1000 ft. in 15 miles one-way. Let me know if you'd like to come up and check it out!
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    Happy to hear you are doing better. Yer young, fer crissakes, you SHOULD get better. Expecially with all those diet and lifestyle changes you've made!

    Maybe I'll see you on the trail out at Hodges. I've been laid up for quite a while too, but I believe it's turning around. Unlike yerself, I DON'T have youth on my side.

  23. #23
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    Glad to hear that! Take it slow and don't push it to hard, too soon.

  24. #24
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    Good to hear your're cleared.
    As for Hodges, don't do the south side! I rode it last Saturday and it ended up being quite the workout (went until I couldn't climb the rock gardens anymore). Keep to the north!
    If not biking, then what?

  25. #25
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    Quote Originally Posted by Klurejr View Post
    Update!!!

    Just got approved by the doc to start riding again!!!! I don't think I can ride at Calavera just yet, too much climbing and rough downhills, but I can do something like Mule Hill or in his words "Lake Hodges" is fine. Now I need to get a new chain for the bike and get my rear deraulier adjusted so I can get back in the saddle!!!!!
    Right on man.

  26. #26
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    Sooo, I finally got my bike back together and did my first ride yesterday out at Calavera with a buddy. I have been hiking out there a bit over the last two months building up my endurance. It is amazing how much pain your muscles give when they cannot get enough oxygen. I go back to get another CT scan done next month and will have a better idea of whether or not I am healing.

    Yesterday I was able to put down 4 miles, which is not much I know, but it was more than I thought I could do. Just did the easy loop around the lake, and up the hill to the Cement Pad and back to Skyhaven. Here are two pics of my bike just because.



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    Amazing how much we take for granted till its out of reach isnt it?

    Glad to hear you are (hopefully) on the mend.

  28. #28
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    well, here is another update. I found out in June that my Dissection is starting to heal and the growth of the anurism that resulted from the initial tear has slowed if not totally stopped.

    I have been on the bike more and more and have increased my hiking. I even hiked Mt Woodson last week.

    In fact I was feeling so good I took a day and wen to Snow Summit last week and rode the Trails and had a fantastic day. Here are a few pics and some videos of my buddy.











    Ramp drop off, snow summit - YouTube

    Cruzer trail step up, snow summit - YouTube

    He took a video of me hitting one of the wooden features, but Has not emailed it to me yet so I can post it up on the youtubes.

    Overall I felt pretty good, and according to the two runs I Strava'd I am in the upper half when it comes to fastest times top to bottom, which I feel good about considering the bike I am riding and that exactly a year ago I was in the ICU.
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  29. #29
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    Glad to hear it Klurejr!

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    Keep up the good work! Thanks for the update.

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    Bummer. Get better soon.

  32. #32
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    healing vibes
    the trick is ENJOYING YOUR LIFE EACH DAY, don't waste them away wishing for better days

  33. #33
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    Man, I have no excuse for not being out there. Glad you're doing better.

  34. #34
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    So every six months I get a CT Scan to check progress on my Dissection. I had one done last week and the report came back as no measurable growth since Last July, Everything is showing as Stable. This is really good news, and my Surgeon hopes that at my young age(37 in May) it could stay this way for many years before I would ever need a surgery.

    Back in July my last scan had showed a slight increase in one area and my old Surgeon was recommending I stop all activity and have Surgery. I stopped all activity for nearly 3 months and gained 10lbs while I worked on getting a second and third opinion about surgery. Both of the other surgeons said no surgery was needed yet, and my new Surgeon actually encouraged me to do Cardio activity, so I am back on the bike as much as possible, though I am having trouble dropping those 10lbs I gained....

    I also took a screen grab of what my Dissection looks like. I am sorry if this is gross to some, I find it fascinating. I will post it further down if you do not want to see it...


    Essentially a normally Aorta is just one Pipe running from the heart down to the Legs with many branches along the way feeding blood to all the major organs. Mine is like an old hose that is tearing apart on the inside and causing a bubble to stretch the outer skin.

    As you can see the tear starts at the top of the Aorta, just a few inches outside the heart where it makes a U-turn before heading down to the legs. That large worm looking thing is the result of the Blood pressure forcing a new channel through the "skin" of the Artery(kinda like a blister), that new channel runs all the way down into my left leg.

    This is the view as if you were looking through my back, the Aorta comes up out of the heart and goes back down behind it, those are my kidneys near the bottom.

    High Blood Pressure is no joke, if you have not had your Blood Pressure checked in the last year I recommend you get it checked. Because of my condition I need to keep my BP below 120/80, and with all the meds I am on I am regularly at about 120/70 - 115/65. A normal man my age would be okay at 130/80. At the time my dissection occurred I was hitting at 190/130, and probably had High BP for a few years and did not know it.


    On to the pic:

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  35. #35
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    Last edited by tjchad; 03-25-2015 at 12:50 PM.

  36. #36
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    Be glad you caught it early, it is way more dangerous than many realize. I am only on 3 different BP Medications these days, but I was on 5 or 6 when I first got out of the Hospital.

    Major Side effect of all the Medication is my Max Heart Rate is about 143 when I ride, so I get burning in my muscles pretty early on due to lack of oxygen. I don't care if I am the slowest up the hill, I just love being out on my bike.
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    That's a gnarly looking pic, Klure. I've had hereditary HPB sinc 50..they call it "Essential Hypertension" since ther is nothing sae for a genetic source for it. My old man got it at age 50 as well, and he was running the UDT/SEAL trainees 10 miles a day on the beach, 5 days a week. He has a really hard time following the Navy Doc's orders to take HBP meds.
    I know how he felt now.

    The only good thing for me is, since then, my cardio pulmonary strength has increased so much that my BP dosage is down to about as low as it can get, and my BP is still around 100/65, with a resting HR in the 40's.

  38. #38
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    Last edited by tjchad; 03-25-2015 at 12:49 PM.

  39. #39
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    Quote Originally Posted by Old Ray View Post
    That's a gnarly looking pic, Klure. I've had hereditary HPB sinc 50..they call it "Essential Hypertension" since ther is nothing sae for a genetic source for it. My old man got it at age 50 as well, and he was running the UDT/SEAL trainees 10 miles a day on the beach, 5 days a week. He has a really hard time following the Navy Doc's orders to take HBP meds.
    I know how he felt now.

    The only good thing for me is, since then, my cardio pulmonary strength has increased so much that my BP dosage is down to about as low as it can get, and my BP is still around 100/65, with a resting HR in the 40's.
    Felt pretty Gnarly when it happened too. Major pain in my upper chest when it first tore, then the pain moved down my back as the tear did, I think the tear took about 30 min to develop, that is my fuzzy recollection of that day and how long it took to get to the ER and get my BP under control. The pair did not move down my back until I was already at the hospital, and I still have pain right between my kidneys, all internal pain, not muscle pain.

    We suspect there is a Genetic deficiency on my moms side of the family that leads to weak connective tissue, and when you pair that with HPB the results are not good.

    One of my Uncles recently had an Aneurysm just outside his heart on the Aorta repaired, his older brother, my other uncle died from either a burst Aneurysm or possibly a dissection like mine (no autopsy was done, all speculation) over 10 years ago, he was only 47. My Grandmother on that side has an Aneurysm on her aorta just outside her heart like my uncle, but there is no reason to operate on it now, she is 72/73 years old now. One of her cousins also died of something similar and another cousin is living with the same kind of aneurysm. If my Aorta had no dissected I probably would have developed an Aneurysm in the same spot.

    I had some Genetic testing done but no markers could be found, so we cannot say for sure what the cause is, but at 34, I was the youngest so far to have an issue in our family line.
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  40. #40
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    Quote Originally Posted by tjchad View Post
    How the hell does someone in the kind of shape your dad must have been in get HBP? My coworker was team support and is in great shape and also has to watch his BP. Crazy, even when you work at being healthy it's not a guarantee. I always tell him "at least I look unhealthy..."

    I guess it's like they say- HBP is silent. You really don't know it's there until it's there.
    Hypertension can be the result of genetics and have nothing to do with how good a shape you are in, also a diet high in sodium is not too good for BP.
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    Quote Originally Posted by Klurejr View Post
    Hypertension can be the result of genetics and have nothing to do with how good a shape you are in, also a diet high in sodium is not too good for BP.
    As I mentioned above, they imply refer to that kind of genetically linked HBP as "Essential Hypertension", and diet and fitness can have little, but not much, effect.

    What you got sounds a lot like another genetic-linked connective tissue disorder. Hernias, tendon tears, and aneurisms all can result from these conditions. It's always good to find out what condition it is, even if there is not much they can do about it.

  42. #42
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    Man that is a nasty dissection. No wonder the surgeons mostly want to avoid operating with branch arteries involved. I don't know if it would work, but perhaps there are some natural protein supplements that may assist an artery healing? It is very hard to find any evidence for dietary involvement in repair of vessels, but maybe one of your docs has information from research?

  43. #43
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    Quote Originally Posted by Ridnparadise View Post
    Man that is a nasty dissection. No wonder the surgeons mostly want to avoid operating with branch arteries involved. I don't know if it would work, but perhaps there are some natural protein supplements that may assist an artery healing? It is very hard to find any evidence for dietary involvement in repair of vessels, but maybe one of your docs has information from research?
    I tried a few different things the first year and nothing changed when I got my CT's done, in fact the stretching in some area's got slightly worse, so I kinda gave up on wasting time on Supplements that may or may not do anything for me.

    I just focus on eating healthier than I ever had, and exercising as much as possible with the hopes of losing a little weight.
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  44. #44
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    I do statistical analysis for health risk for a living. Everyday I see the results of this not being managed. I am Stoked you and OldRay are still on the right side of the dirt. We all have hands we are dealt and it sounds like both of you are doing a great job with your cards.

    Keep going and thanks for letting me (and others) tag along for the ride. I hope to slowly trail off behind both of you if we ever get to ride together (I am slow).
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  45. #45
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    Quote Originally Posted by Klurejr View Post
    Hypertension can be the result of genetics and have nothing to do with how good a shape you are in, also a diet high in sodium is not too good for BP.
    Depending on the study, 30-40% of cases are linked purely to genetics, so 60-70% of patients have it because of "Lifestyle choices".

    Just FYI
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    Quote Originally Posted by HBSURFDAD View Post
    Depending on the study, 30-40% of cases are linked purely to genetics, so 60-70% of patients have it because of "Lifestyle choices".

    Just FYI
    30-40% of the population is HUGE. 60-70% of our locals being clinically obese sounds about right, too.

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    Last edited by tjchad; 03-25-2015 at 12:49 PM.

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    If you didn't shuttle and DH (all the time), you wouldn't have these problems...I don't shuttle and I don't have these problems...see, it's that easy! :-)

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    Quote Originally Posted by RTSO2112 View Post
    If you didn't shuttle and DH (all the time), you wouldn't have these problems...I don't shuttle and I don't have these problems...see, it's that easy! :-)
    Chief, sometimes you really take the cake.

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    Quote Originally Posted by Old Ray View Post
    Chief, sometimes you really take the cake.
    Let's just say, I've been to "hell" and back many times...life's just not that serious after the first few trips!

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